Thursday, May 31, 2012
Wednesday, May 30, 2012
Monday, May 28, 2012
Sunday, May 27, 2012
Saturday, May 26, 2012
Friday, May 25, 2012
Wednesday, May 23, 2012
So, I'm the "bad guy" again.
Frakkin' brain cancer.
Monday, May 21, 2012
Sunday, May 20, 2012
Saturday, May 19, 2012
Link goes to a video from this week; Lanette heads the local brain tumor/cancer support group here in AZ. Gray Matters is the non-profit www.thinkgeek.com donated to back in January. They rock with support, love, and care.
I know some of you came to my blog because you or someone you love and care about is also fighting a disease like this. Lanette is someone you should also know.
She's a hero to me.
Friday, May 18, 2012
Thursday, May 17, 2012
Wednesday, May 16, 2012
Laughing my butt off right now; Leto is trying SO HARD to flip the light-switch in the hallway. He's tried jumping straight up, and leaning over from the fan to reach it; and falling off the fan every time. The most entertaining part is the switch is down, so even though he can reach the panel, he can't switch it to "up"!
Monday, May 14, 2012
Thursday, May 10, 2012
Family and Friends,
It's been a little bit since the last real update on Kevin past his entering into Home Hospice Care this January.
It's been a rough few months with many new challenges, but also quite a few wonderful moments, new memories for us both, and a wonderful outpouring of "geek" support for my beloved Browncoat.
Kevin is having a lot more issues right now, which is the nature and course of his disease. Before he went into Hospice service this year he had made it well known he was not interested in more chemotherapy when his brain tumor(s) came back; he wanted the best and happiest quality of life he could have for as long as he could have it. I have done my best to honour his wishes and with some wonderful support from around the world, I have been able to keep him at home and mostly comfortable. He does not consider this to be "giving up" or "not fighting"; he is working with his grief towards acceptance of the end course of his disease. Please know that the intent of this message is only to give you the opportunity to get some closure both for Kevin and for yourself. To give you the knowledge and awareness that despite our best efforts, an immense amount of prayers and well wishes, the love and support of our family and friends, and the best advances that medical science has to offer, he is not going to get "better".
We are losing Kevin, day by day, and the course is set and tragically unchangeable. I would have you know that, and have the choice about how you would like to handle saying your goodbyes. We also want to pass along that the window for saying your goodbyes is starting to close more quickly now so if you wish to visit or call or write, you should immediately start making those plans. Since stimulation has a direct line to his exhaustion and fatigue please take directly to me if you are out of State and would like a longer visit (over a period of a few days).
I am asking those who are local to try if you can to come for a day/evening visit or even a phone/Skype call. He is still able to enjoy things, and his personality still shines through on most days; but he is having more days where he does lose "himself". This is common with brain injuries/cancer. He may recall you and every detail from the last time you were together, but also be aware he may not really recognize you or how much time has passed between events. If he is not upset over this, or seems to be in a time period from when he was younger, that again is just part of his disease. For now we suggest day/evening visits be kept to 1 hour or less, unless details have been discussed with me prior. Some days he may like to go out for burgers, or to see a movie - and he has a wheelchair if he needs it on those days, and others he may just enjoy a short game or talk at home.
I will do my best to address any questions you might have.We both thank everyone for the continued kind thoughts, wishes, and prayers.
Please visit www.savewash.com for more information on Kevin and Glioblastoma Multiforme brain cancer.