Vague

I woke up this morning feeling weird and off. Neither cat slept with me; Leto enjoys his "perch" of the cat-bed on top of the laundry hamper.
The work comes along, slowly.

I ran into my landlord's father the other day while I was taking out the trash. English is perhaps is 3rd language, but he came over and gave me a hug and said he hoped I was well and they loved me as a tenant, and loved my backyard garden, and they (his wife and his kid, my landlord) missed Wash; he was a good person.
It was a nice reminder and good to hear.

My neighbours behind me have taken up on my style and have put up solar lights exactly like mine in their backyard and hanging from their shade/covering. I take it as flattery; my place looks lovely in the evening, and they must have appreciated it.

I had to take today off of really sorting or organizing. After doing the bedroom yesterday; perhaps the most emotional thing, it was a bit much.
Also a shirt of his I found at the bottom of the hamper under the canvas liner. I thought I had emptied the hamper months ago, but that shirt escaped me.
The pillows only faintly smell of him now, but that shirt was like the scent right around his collarbone, the smell I chase in my dreams. The smell that reminds me that when I wake if I keep my eyes closed I can pretend for a second or two longer he is not gone. That one.
It's only been a little bit of sobbing today. Thankfully. Nothing keening or racking.


There is an oddness and stillness within the house. I have to say house, because it does not feel correct to say "home". I've lived here longer than any other place as an adult, but without Wash, it just does not feel like a home. Home ceased being singular to myself (and Aelphie to a degree) when we got engaged and moved in together. I knew many many years ago that with the way I live and prefer to live, and can function... it is not something that is really compatible with the way the vast majority of people prefer to live. I lived on my own, by myself since I was 17. I moved in with Wash right around my 22nd birthday. He was the first person I ever could see myself or could consider moving in with. He accepted me, completely and totally. We had our growing pains the first couple of months, myself getting used to living with someone else; even thankfully under the fulfilled condition I laid out of needing a place with two bathrooms. He had always lived with other people. Wash was an extrovert and someone that I think was easy to love, easy to live with- for the most part. The incidents and adventures he had with all his roommates were told in the form of happy stories, jokes, things that might make myself twitch and scream, but he would only laugh at. That was Wash.
So it quickly became home with Wash. We would be married. If we moved for school for either of us, we would still be together, in a home, even if it was in a dorm room. That was the plan. We could handle renting places for a few years, get established, we even agreed we could deal with a child while renting for a few years before wanting to have our own [SF] home. Wash, being the Architect, had of course already filled two or three notepads with his designs for our future home; how it would be built, the material, the layout, how he could even expand additions on to it for office space, or workshops, or extra guest or children's rooms. He designed a greenhouse for me as well; he wanted me to have the garden of my dreams.
Home became wherever we were together.

Sometimes, often, I talk to his TARDIS urn. Probably at least once a day still. I never expect nor receive any contact back. It is not the same though. It is not his energy that is left around. His things, his memories, my memories, but not his energy.
Once we moved in, once we said our vows, it was to the end. To death.

He promised he would let me go first. He did not often break promises. He really was a 'man of his word', but that time, he broke it.
I did not ask much from him, but told him that I did not want to live out my life waiting to die after him.

I am happy for the recordings I have. For the videos he left for me. The cards he gave me long ago, the notes I still find around the rooms, tucked in books.
There are still days, many day, where I wish I could call his phone and hear his voice. Where I wish I could hear which messages he saved of me telling him I loved him. All of them? Many? I wish I could hear that voice. I wish I could understand why his phone service was shut off the day after his death.
He was not on my plan, but had his phone from his days long long ago in California.

It does not feel like 2013.
It does not feel "right". Things are changing. Some against my will or wishes, some things instigated by me for my own good.
Some nights it becomes about the simplest of things. Remember how it felt to hold hands.
Remembering what it was like to be lying down and staring right into each others eyes. He had soft, wonderful eyes. Happy, large, clear eyes. He was often smiling, but his eyes held most of his expressions.
I remember the texture of his beard. The colours in his hair. The shape of his ear and neck. How his hips drew in just slightly but down to firm thighs and great legs- be it a bit pasty.

He loved to bother me by surprising me in the middle of something to quickly give my nose a wet kiss.

I've moved my pocket-watch to the bedside table. The soft ticking is comforting. It reminds me of Wash, of his heart-beat.

I have to check the office closet, but it looks like I'm missing some key pieces to my bed frame. This now is a bit of an issue as I'd like to sleep off the floor now that Wash rolling or falling out of bed and hurting himself is not an problem to consider.

Time does not make it easier. Not at all. Time reminds me of the future I/we had imagined.
2013 was the point where he should be done with school and into his Apprenticeship. 2013 was going to be my point of finishing my undergrad triple, or starting grad school with a specific major. 2013 was going to be the year we started to make solid plans for long term; looking at careers, looking at places to settle, to build our home, a place with good school for the kids we wanted to try to have in a couple years.
It's not, though. 2013 is the year I'm a widow. It's the year I won't be traveling to Taliesin with Wash for his school.
2013 is the year that I wonder if I will have an anniversary; does it still count if the other party involved is deceased? Is it still my anniversary, or was it my/our anniversary?
2013 is the year I travel alone, because I am alone now. I don't have a husband, a companion.
2013 is the year I wonder if I can watch the shows I/we loved, without it being too painful to enjoy.
I'd like to catch up on Doctor Who, but I literally don't know how without him. It feels as wrong to me as waking up alone in my bed. Same thing with Blood and Chrome. It is hard for me yet to figure out how to enjoy something when all my mind can think of is how much I wish my husband was not dead to see it; to have his fanboy and geek heart enjoy something. Because he lived for certain shows. He loved me, this I know. But he lived for the moment Kara was screaming from the brig "YOU'RE GOING THE WRONG WAY!"
He lived to text me "Morning, Starbuck. What do you hear?"


I miss having an (amateur) astronomer as a partner. I miss being woken up for 15 mins to walk outside to enjoy a full moon directly overhead. Large, and bright.
I miss that on evening walks, he always knew the stars and planets.


It's only been 5 months.
I still miss the person I was going to spend the rest of my life with.

Union Mandated Break

So, for now, my garden is "done". [Maybe one more veggie or light set...]

I planted all the summer flowers and pulled up the winter bulbs to store away 'til Oct. I have new pepper varieties, new tomatoes, strawberries, herbs.... I have a little solar light turtle, and glass water bulbs to go in some containers. There is new bright colours ALL OVER the back garden. I also got new solar lights on the umbrella, so at night it looks like stars! I got rid of the trash (except the bikes, I want to donate those) and put in new lights around where the wild mint is growing. I'll put pics up after Wash sees it on the off chance he's checking my blog from his Hospice library.

I already cleaned the kitchen and fridge and I'm purposely not cleaning the living room or office. The bedroom is about the same. I'm doing MY laundry so it's done.

I have breakfast leftover, and my friend is taking brunch to Wash in a half hour.

I slept about 7 hours last night, but I'll have a chance for a nap before we get Wash this afternoon.

Time for one more Harry Potter, I think.

I had a good chance to get some rest, to get some things done, to clean, to laugh, to treat myself.

I had my nails done with one of my best girl-friends. I got to have a LONG phone conversation with an old friend. I got to sleep on the whole bed.

I missed Wash, to be sure. A lot. Perhaps not as much as Leto... that cat pretty much has stayed 4 days waiting at the front door for Wash to come home.

I will need more time again, this I know. I will need more rest.

I needed this break though. I needed the time to stay sane, to come back out of depression and Sneaky-Hate-Spiral.

I perhaps don't feel "happy" per se, but I no longer feel vast emptiness. I can see Hope again. I can see myself alive and as an independent person after Wash dies, for I think the first time.

I also feel stronger to be kinder and patient. I needed that.

This was a good thing.

But which one sings?

It's been a busy few days for sure! Monday was one of the best days I've/We've had in weeks. Wash was VERY present. He was himself, he was nice and sweet and even though physically he was not up for much, I got a good cuddle in with him, some nice hand holding and really, just some good moments with my husband.

Then, most of him left again. He tried very hard this week to compensate, as his parents were in town for a couple days, but he was looking for brain and energy that did not exist. He needed some long naps, a lot more Xanax this week, and more patience than I had.

Caring for my 27 year old physically, but mentally .... not, husband is a lot like a grown human's body, the endurance of a newborn, emotions of a 4-6 year old, and the memory of a 20 some odd year old. It's a lot.

He gets mad at me when I have to explain something a few times, or phrase it differently so he understands. He is cogent enough to know he doesn't understand, but not enough to really grasp what he knows he has issues with.

I think it was hard for his parents to come and really SEE him this time. I'm glad they did, he is too, and happy he was able to be honest for the most part with them. I'm personally sad, I am not sure if he will have the relationship with his brother he wants, but on that; Wash's bro wants a (probably, I'm not Wash, so I can't say for certain) well deserved apology, but Wash is NEVER going to be able to do that. He doesn't remember they fought, let alone what over! Any apology is truly meaningless. But, I don't know if Wash realizes either that his brother has to work through things as well and "just because" he *is* dying, it does not mean that everyone he wants is going to be placing Wash as their top priority. As sad on either part as it might be.

But, Wash was able to say some things, his parents were as well, and my personal hope is that all parties have begun to move forward again towards acceptance.

All the rest is just drama that pisses me off, and I've had far too much of that this week.

Thank you to the several awesome folks who have sent us Girl Scout Cookies. Wash's steroids have been up for a few weeks now and he is MOST appreciative. I have a nice Thin Mint stockpile which should last me through the summer and winter. Since we're in AZ a wonderful treat I've loved for decades is freezing Thin Mints and having them out on the porch on hot summer nights when the sun goes down.

I've been hard working in my garden to make sure that option will be a nice one for Wash this year. My fruits and veg are doing great, with the exception of the melon which is not taking. Boo. However, lots of bean and peas, lots of carrots, tomatoes, my strawberries just starting to come in, so we have a few ripe once a week or so. I've got all my solar lights up, and at night the flowers look great and it usually smells like basil and wet rosemary now. My gardenia has also finally gotten over transplant shock from Dec and the first bloom opened this morning! I love the fresh smell, bringing the blooms inside.

Wash has lately begun to spend the mornings outside with me and while I water, weed, and garden he usually takes Leto out to play with grass and he has begun to "read" the daily newspaper. He asked me last week to start getting the paper; it's too hard for him to try and keep up online with the news now, too many distractions. So he kinda skims the paper daily, and if he seems something he wants to read or know more details about he asks me. I have noticed we do have some more things to talk about, but there is so much bad shit going on, Wash tends to get angry like me at certain news.

I try to check the news the night before so I know if I have to censor it. He's asked me to remove traces of a few things; some certain architecture things, anything to do with Taliesin/West, and Earthquake reports by his hometown in CA. Not a large list, but we've learned from hard lessons those things will trigger the shit out of him, and he gets very depressed or worse. It's a little more work for me, but it makes him happier.

Mornings have turned for us as well, he needs to go VERY slow, and usually needs some other help to tide him over for the hour or so he is awake before his pills kick in. I have to have extra patience during this time. He's not fully awake, aware, conscious. But, he tries to be. There's a lot more work for me every morning. I want to try though. I have to try.

His Hospice check-outs were pretty good this week. He is having some medication side effects now, he does have the standard "Chipmunk" steroid face. A few people had mentioned to me he was looking swollen, but I thought it was just his winter beard left over (see pic from Sunday). However, he shaved down Mon and Wed and as the photo above shows, it's not beard, he just has more swelling. He is slow GI wise, but still normal, though he is physically changing; his legs are getting skinnier and his muscle is wasting a bit. His belly and chest are getting more barrel shaped though; meds and just the inevitable path of cancer. He's still not eating like he was last year, but he is eating a little bit more on a daily basis. It's hard for him. He forgets he is hungry easily, and he won't eat unless he is being helped and reminded. He can feed himself, but he won't remember to eat on his own. That's hard to watch.

I will put this out; if anyone wants to contact me to help me get him a properly fitting UtiliKilt I would be beyond grateful. He loved his UtiliKilt from the day he got it, the day he was married in it, even some of his early chemo sessions he went in it. But, starting around last summer, he lost too much weight and could not wear it, then gained it back/ had it go to his belly. His old one does not fit anymore. It's what he wants to wear when he has a Living Wake. Should I try and see if the company can alter it for him? Get a new one at this point? Any advice or help I would love.

Also, in the photos above you may notice a new kitty; the kind, awesome, cool, inspiring, (positive adjective) folks at www.thinkgeek.com sent Wash a singing "Soft Kitty". We (ok, me.) named her Zazzles. We are in agreement she's a girl. Wash calls her his "Soft Kitty" though. Leto is just in LOVE. He keeps snuggling up to her where ever we place her on the bed. She's about Aelphie-sized, but unlike big sis Aelphie, Zazzles just sings. Does not hiss or try to fight Leto. He even fell asleep on her last night.

We're both pretty darn happy, and I am very thankful for the kindness; I smile when I see him cuddling his new plush and happy. So again, thank you.

I know there's more to catch up and talk about, but Wash needs me to cut a bagel for him.

Thank you, Dear Readers. Always.

Pinata

Well, we have internet and cable back on at home now, hurrah! Wash has entertainment again- honestly I don't understand it but he says he's tired of watching "Hot Fuzz" and "The Big Lebowski" with me this week. I put on a new commentary each time! (Thank you for the movies on Blu-Ray, for both of us they are a nice transportation away from real life)

Wash has had about 4 new meds added this week; I've been spending a lot more time watching him and dealing with the short term side effects. I've wanted to write and it's frustrating that my own personal time has shrunk back to none this week. Wash just needs so much care and attention right now, and we (us and our SW) still have not heard back from the insurance about Wash's ALTECS care. (Who pay/cover respite care and such so I can do the things that need to be done outside of the house etc) It's frustrating.

The good (ish) news is that being treated like this, ignored on a human level, it fills me. It stokes a fiery place in my heart that fills for Justice and Righteousness. It makes me feel like there might be a purpose for me in the world after all; I don't think I am ever going to go back to finish my degree in Forensic Anthropology; Oesteology. Every skull is my husbands'. Every face I have to glue back together is his. It's fucked with me too much.

I don't think medicine is my thing. Taking care of my husband is different; it's necessary. I have never wanted to work with/on living patients, I still don't. I admire like hell the people who do- so far all but one person on my husband's team in the last two plus years has been a godssend. They have been kind, concerned, caring, and dedicated. His nurses, his technicians, his pharmacy group, his doctors- from his Primary to his Oncologist. They show over and over how he is a person, not a disease. If you are involved in the medical field, we might not always say it, but for everything you do for us patients, Thank You.

For me, I feel like I am becoming more of an - activist. Someone who speaks for those who cannot. Someone who works to change public opinion and policy. Someone who can work inside and with the law to change it if needed.

I can try to be a Poverty Interrupter.

A Healthcare Activist.

A spokeswoman for Human Rights.

I'm feeling more Hope for myself when his end comes. I'm starting to be able to be in a place mentally to allow myself to think about the real future; the one without him, where I am still alive. The one where I'm a widow, but I'm living. It's hard and so gorram painful to think, but for the first time since we were told in 2009 he was dying, I can think about what might happen to me after he does.

I want to be the change. I want to help make sure no one else so young like us has to face this. I want to move the country away from having to have thoughts like, "Pay for Food or Medicine?"

My garden continues to come along well. The flowers have all settled in since transplant and the bulbs have almost all come up too. The scent is so lovely. The peas and beans continue to grow by inches every day and I'm harvesting a cherry tomato or three about twice a week. The garlic grows, the rosemary thrives, and the carrots are coming in too.

I decided to treat myself and instead of putting a few dollars away for something I need (I do that all the time. Too much really, but I always put Wash ahead now) that I would grab what I spotted on clearance at Target and got some solar powered string lights for the backyard. We have 12 solar stake lights around the back and garden currently, but nothing to give depth to the fence/border of the back. I'm honestly quite excited and happy with it- the design is pretty and I like making the back into a real happy and comfortable space for us to spend time in. The weather will not hold out more than maybe 2, 3 more months so I have to make the most.

I will lastly just relate our story of being good humans and neighbours; we wanted to go for a walk to the post office yesterday and discovered left on the sidewalk by our yard/Church parking lot was a baggie left with pills. Also a few half drunk Bud Light bottles. We called the local police - it was next to a Church and across from a house with a lot of small children living there- the pills needed to be taken or disposed properly. It only took about 15 mins to have an officer come out and he did a field test on the pills (3 different kinds, about 6 pills and one crushed one) and to everyone's shock- they were all blood pressure control pills! 3 different scripts, but all for blood pressure. How odd! Wash says he wants to write a short story about the pills or something, as it is just so... odd. I guess in this instance someone did really lose their pills!

The officer took them to be destroyed back at the station and we went on with our walk, less fearful for the safety of the local kids now.

Never really a "boring" day here, something always happens.

As someone directly effected by cancer of course I have thoughts on the whole Susan G Komen shitpuddle. But, my friend Lara who lost her mother to breast cancer, and has been fighting it herself has much more weight and connection to this than I. I will ask that if you want another voice on the direct negative impact SGK has caused this week by denouncing Planned Parenthood and ending funding, please hear her voice.

http://getupswinging.blogspot.com/2012/02/race-for-agenda.html

The good, bad, and great

This will be a short update as it is late, has been a LONG day and I just can't type that much, my wrist has been hurt a bit. More details and photos to come for everything.

The good; Wash's parents and brother came in for Christmas and it was a really pleasant trip. He only had one night of sleepwalking since they have been here and has managed to stay on top of his naps and meds, despite the distractions. He got to spend some good time alone with them, and we all spent some nice time as an extended family doing Christmas and Hanukkah stuff. We did some small gift exchanges and spent time catching up and even getting my backyard and garden sorted out. It was an encouraging trip and I know Wash really enjoyed the time. I know he has been missing his parents and also been really wanting to see his brother, so it was so good for everyone.

The bad; I made a mistake past Friday and went driving without proper ID. We were stopped and I was handcuffed and detained by the police for about an hour. I was only cited for one thing but they towed my car since I did not have proper documents to drive. So my car is in impound. I'll go into details later; I was sober, it was 3 blocks from home, no one was hurt, I was not arrested. I made the mistake to drive the few streets without my purse that night, though I do have very strong negative feelings about being handcuffed as I was not posing any threat or hiding my identification at all, I just did not have the "proper/acceptable" form. I'm going to court tomorrow and with luck will have my car back. This will cost me.

Speaking of cost, also part of the bad got the/Wash's MediCare statement for Sept-Nov. We owe about $550 in costs for doctor visits for him. That's the uninsured part. It's still shocking to me that these are the costs when he is not even on active chemo. These are his mostly "healthy" costs. I've been talking with my mum, I think when he goes on full time Hospice help I'll have no other choice but bankruptcy. Adult pants.

The great; So my In-Laws helped to spend a couple hours in the backyard cleaning and clearing away the crap and making it tidy again. They helped to transport some new plants I bought with my birthday money (Home Depot gift cards, my friends know me) and then I spent more than 3 hours working and planting and transplanting and moving the garden around. There are a bunch of flowers now- I even spotted a hummingbird today! I put in a few more vegetables and seeds, and bulbs, as well as bought a large mature tomato to replace my 3 year old one (destroyed). I also invested again in jasmine and gardenia bushes. The small porch has been cleared and soon we will have our little chairs out to sit and enjoy. I also put in the solar lights I got for my birthday from my mum around, and it looks amazing at night. I cannot wait until the spring.

The other good part, to which I also have photos is that we got some WONDERFUL holiday cheer from www.thinkgeek.com today. Apparently some of the "worker monkeys" read my blog here and know how HUGE geeks Wash and I are (as if his name did not give it away). (Hi friends! You guys rock!) and wanted to do something for us- they did "something" alright.

We got so many wonderful geeky things! New shirts! Chromosome towels! Adipose toys! Mad Scientist building blocks! Toys for my nephew! (he is going to LOVE his food-heavy machines and the jet plane bib, his dad is a pilot) We're going to give the Neuron Plushie to Wash's neurologist when we see her in about 2 weeks. (I bet she will laugh, she has such a sense of humor) I am keeping the Ebola plushie, I frakking admire filovirii, plus it's cute. They also gave us the Blue Sun 'travel' poster SET, which I cannot gorram wait to frame and put up. Nathan Fillion's giant head in our Serenity poster should be jealous. They also sent a treat for the furry legged ones in this house; a 'Cats Attack! Cityscape scratching post. I will have to get a video of Leto attacking it.

We love www.thinkgeek.com and have for years. I've been treating myself and my (step)dad to their toys for years. It's a great company and now I am even more so convinced. Geeks are a special breed and I truly love and admire how they (we) come together as a community. Our season would have been a lot less jolly without their intervention. I cannot even fully articulate yet just how thankful I am to them for this - the gifts and the moments it gave us. These are two happy and so thankful Browncoats.

So, more details and photos to come, but there's the last few days for us. I hope all my Dear Readers have had a safe holiday season, regardless of family, distance, or geekery.