developed Sleepwalking (which may be seizures as well). To keep myself from freaking out
with
thoughts of him falling to his death on the stairs at night or just walking out the front door, I'll
tell the funny things he does in his sleep;
*Turn off all alarms on clocks and cellphones / re-set the digital clocks
*Tried to make the bed - with me still in it at 3am
*Tried to fold a blanket- again with me in it
*Took a jar of jelly out of the kitchen and placed it on a bookshelf in the living room
He will see his Internist today and hopefully his neuro will get him in in the next few days. The
last few times it has been "not a tumor". Every single time this happens that is what I wonder
and worry about; is it time now? Has it finally come back? This cancer has a 98-99% rate of
return. It's a "when" not "if". Neither of us is ready to fight another tumor. He's had two years
post surgery. That is both so short a time and so long all at once.
It does help to explain some of his behaviour this past week. His 4 hour afternoon naps make a
little more sense.
Right now every bit of good we can get means so much. I know but I'm not ready to admit
what is to come. I'm not ready to face the pain and grief that even denial will not save me from.
This story, our story, will not have a happy ending. Interludes perhaps, but little glioblastoma
multiforme does not make for "ending" that society loves to see. There is no cure coming
down the line. I HAVE to make the best of what we have, because there is no deus ex machina
for this.
So, we are going to try and go out to enjoy some lights tonight. Do some things with the
family. It is still my job to give him a Quality of Life high enough that he wants
to live. Sometimes that means holiday light displays, hot chocolate, and Tashi wearing closed
toed shoes. And snow.
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