Showing posts with label Brain Tumor Awareness Month. Show all posts
Showing posts with label Brain Tumor Awareness Month. Show all posts

Thursday, May 9, 2013

Like a rainbow

I am not touching the topic of Mother's day with a 40' pole right now. Moving on.


This week, with a lot of encouragement and support from my friends, local community, and most family, I decided to apply for a summer college programme abroad. I would be gone between 4-6 weeks, depending on how I can set things up before I would leave.
I am hoping to find out soon if I was accepted (it's a very selective Women's College) and if I can qualify for some scholarships to help out. I would still need to raise funds to go, but...

This is the first time since Wash died, and certainly the first time in perhaps the last 4 or so years I have felt like I desire to go back to a college environment and learn. Since Wash was sick with brain cancer, I have felt zero desire or goals to go back working forensics. To go back to bones, and skulls- of which all morph into his- to go back to Death, really.
No. I've spent too much of my life already in and around Death.
This is a chance at something new.
This is a chance for me to do some self-exploration.
To see what knowledge still excites me, what stokes my personal fire.

I can earn credits that can transfer back to the US. I can be in a (temporary) new place. I can clear my head, focus my mind, distract the pain in my heart.

Now, I'd have to be accepted first. I have to make sure my house here is taken care of, either house/cat sitting or subletting. It is one thing to go away for a month, it is a negative thing for me to come back and not have the home I have been living in with my husband since 2008. This much I have already talked to my Hospice doctor about. Now, there is a hope that perhaps when I come back I will be stronger personally to really start to not just sort through, but figure out where Wash's things and stuff will go. I have about a dozen packages I still need to send to his friends of his things. But, I am still letting Future Tashi deal with that, as right now I see a mountain of his clothes that will never be put back on his body. Fabric with a faint scent of him. Fraternity and Drama/Theatre shirts. Dress clothing.

His custom ties. Those I know what he wanted done with, how to get them to his friends, but it does not make it hurt less to do.


I had a moment last week. I was having a conversation (in my head) with someone, and my narrative said- "When I was married..." not "...I am married."
I think this was the first time my brain has phrased it for me. My world stopped last year, but things move. The Earth still spins, I still age, my cells grow and die, plants flower and die, and lives just move.

I had a Phoenix ComicCon brochure come to my house. Addressed to Wash, of course.
It was like a punch to my chest, all air gone out of me in a second.
It really sank in, Wash will never see another 'Con. I will never get to dress up or Cosplay with him again.
I am the one left. I carry the burden. I carry his voice, his desires, but in a way he will never see.
Too much emotion overwhelms my system and I just emotionally shut down. It hurts less that way.


Back to topic. I need to make sure my cats will be loved after while I am away (if I am accepted.). Leto really has not gone more than a day or two without human contact his whole life. He is a Comfort Cat, and he wants to be where he can get pets, attention, and love from other humans. Aelphie I am also worried about. She really only ever bonded with myself, Wash (after some years), and a great friend from college - and his sweet cat. I don't know if leaving her at my house, with me gone, is good for her, or if it would be worse to move her somewhere for a month where she can have more attention and less Leto/kitten escapades.
I worry about the TARDIS urn. I worry about leaving it, I worry about moving it. Anxieties and worry.
The cats are the closest thing to children I will ever have. Leto is the only living connection left to Wash- that is not me. (in my house)

I worry if I can raise the funds to go, to cover airfare and the costs for my home as well. It will be more than 7 more years before I will be able to get a loan, or not need a co-signer for anything. That puts me in an odd place for a 26 year old. Even harder trying to get really any job to get me out of the house, earning, paying bills. Part of me hopes this trip might help with that though, making new contacts and friends, or even just being able to say that I've done something in 4 years besides caregive (unpaid, thanks Arizona!) for my husband.

This is a chance to do something for Tashi. Not 'Wash and Tashi', not in his memory or honour, but for myself. Who I am, without him.


Wash always supported learning. We had a plan. He was willing to work to pay for me to finish my schooling once he was graduated and had done his Taliesin internship. I was willing to work and wait for him to finish. There was a plan, we both supported. We had even planned that if we had a child while I was in Grad School he wanted to be the Work From Home Dad. He wanted me to focus on school, and my desires. This I know. He would have supported me in this. He would be happy I have at the least, applied.



This feeling? It is not Depression. It is not Grief. It is like a horrid hybrid monster of the worst of both of them. It sneaks up in the quiet and calm before sleep. It strikes at a song, a moment, a memory.
It fills the nose with smells that trigger memories of happy or sad moments. There is no control. There is no bargaining to stop. It does not listen to pleas or rationality. It rears up, an angry wild stallion. It runs deep inside, pounding hoof beats to match broken heart-beats. It is tears at a kitchen sink that do not come from onions. It is a weight so heavy the body literally drops. It forms a Compassion, a desire to not wish it on any other human; though most every single human will experience it. It is the pain and darkness of a mile underwater, a place sunlight does not- cannot penetrate. It is the creeping darkness that whispers over and over and over- the worst broken record- "Is there really any Hope left?"

This is the feeling I have and fight every second, hour, day. I do not think English has a word comparable.
I wonder who else is aware of this? Who else knows this feeling? Who else knows this is what I am living with?

There is a lot for me to ponder lately. I have been trying to focus on the positive ponderings, less on the negative ones. It is a battle. Every day. For me, time does not ease up. Time allows no real respite inside my head.

That is where I have been, Dear Readers. That is where I am.

Friday, May 3, 2013

Moment of Silence

I saved my "ExtraBucks" from CVS lately, and bought myself a scented candle last night when I picked up my 4 new scripts. That brings my total for the month of May at 9 scripts. I always *love* (sarcasm) spending time deciding if I need to buy electricity or medicine each month.


But. I splurged and bought a $3 candle.
And my room smells nice. Relaxing.
Reminds me of the candles Wash would buy for me/us. Reminds me of the small signs he cared.

As I was walking home from the pharmacy last night, I realized with some quick math that Wash and I had walked that same stretch at least 600 times together. Probably closer to 800.
I could see the changes, like small photographs being flipped together. Winter, summer, seasons changing. Building being torn down and built up. The first few hundred walks, and then a Ghost Rider bicycle on the corner appears on 10 May 2010.
There are flashing lights, sirens. We are escorted to the other side of the street, and decide to walk home instead of further down the street.

It is now cooler, almost "cold" for Arizona. We are walking, hand in hand as always, Wash to my right side. He is wearing his "GEEK" black knit hat. He is laughing at something. His beard is thick, and I can see all the colours in it. Reds, blondes, browns.

It is a spring night. I am holding his hand with my right, and a bag in my left carrying Ginger Beer for us. He is walking slower now, but still laughs. There is a slight breeze, carrying the spiced scents of the Thai restaurants towards us. He is excited about his upcoming Stand-Up show.

It is summer now, and hot. Blinding. No more shade. Even the birds are standing in a single file row in the 4" of shade cast from a light pole. Wash is at home, no longer able to walk with me.

The photos blur faster. Rewind. I am out of breath pushing him in his wheelchair. We are trying to get early to "Wicked", our last anniversary present. Wash is angry and yelling, I am stressed and tired. Everything feels uphill at that moment.

Backwards. It is late fall. I am tired from work and moving. Wash is tired from moving, work, and school. He stops me from my load of laundry and pulls me outside. It is November 2008. We are on our first walk through our new neighbourhood together. His hand holds my right one. He is pointing out the styles of the apartments, townhomes, brownstones around us. He is wearing his work/welding boot and walking with large steps. I have to remind him to slow down, I cannot walk as fast.

Time ceases to be linear in my mind. It is past and present at the same time. Blank spots for the future. Images imagined of what could-have-been, what should-have-been.

He throws his head back, his neck long and scruffy with red tinged hair. He laughs. He smiles.
He leans closer and kisses me. I am flush with warmth.



I am home. The street is dark. The trees and front flowerbed across the street are gone, along with the kind older woman who tended to them daily, and spoke often to me about plants and gardens. The lights in front of my complex are different, installed a few years ago. The tree in our front yard is missing the large branch that a storm blew into my neighbours' bedroom window three winters ago.
Everything is different, and the same.

But I am now walking alone. The feeling of Wash holding my hand fades.


I walk inside my home. No longer "ours". He is gone. His welding boots are still on the shoe bench by the front door.

I light the candle. The scent takes me back in time again. I eat, I take my pills. I try to sleep.
I snuff the candle, but the smell hangs in the air, light, and comforting.


I am awake now. It is dark, still nighttime. I am hearing shadows of voices. Male? Female? Faint, but untraceable. My house is empty save for the cats and me.
I go back to my dark bedroom and hug Hoban tight. It is faint, but he still smells of Wash. The stuffed bear hold many hugs, and a small stuffed heart kissed by my Love when we had the bear made.


For the first time in weeks, I sleep.
I sleep, and I am thankful I do not dream.


The room is silent now, save for the typing and fans. My candle is lit again.
Tears are falling while I write.

There is a sense of emptiness. The last exhalation before a gasp and holding.
There is Silence.

I am Alone.

There is only physical self. Gaius-Wash is silent today.

Wednesday, May 1, 2013

May Day

May is National Brain Tumor Awareness Month.

Time again to post the first story of how we came to find Wash's brain cancer.
Please Read.

To learn more about Wash's brain cancer, GBM, visit SaveWash 


I'll have a proper update later on.



Share the warning signs. Be aware. Reach for help if you need it, or know someone who does.


I don't want anyone else to die because they were sick and could not afford a licensed Doctor.